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Monday, May 23, 2011

Featured Rollblog 6, with a special appeal

Kevin from Always Home And Uncool, is husband to a very busy wife who, in his own words, is an 'executive goddess', and whom he refers to in his blog as 'My Love'. He's also stay-at-home superdad to two kids whom he has lovingly nicknamed 'Thing 1' and 'Thing 2'. He's a talented writer and his blog has received abundant praise and recognition, including Blogger's official Blog Of Note. In the midst of the laughter-provoking articles and the happy family stories, however, there is a tiny bit of not-so-good news that bothers all of us who know him and love his blog. Usually I end my Rollblog posts with heaped praise on the blogging abilities of the author and ask you to go and check it out. However this time I'm gonna talk about the adorable Thing 1, real name Megan, who suffers from a disease called juvenile juvenile myositis, in her case dermatomyositis. Their child's trouble has lead them to join a foundation that is dedicated to helping kids like Megan. He often speaks about this on his blog; recently he sent us an e-mail inviting us to help. I forwarded it to people who I thought could help him in the cause, and I'm including it here so that you can help him, pray for him and tell others to do the same.
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Dear Friends,
It's time for my annual appeal for donations to Cure JM Foundation, the nonprofit working to find better treatments and a cure for juvenile myositis, the autoimmune disease my daughter (Thing 1 aka Megan) was diagnosed with in 2002 at age 2.
My appeal has a little more urgency this year.
In the last month, Thing 1/Megan has experienced a flare, or relapse, of the disease (details about her flare and her treatment are on my blog). She had been essentially symptom free for the past three years and close to getting off all her medications until then. A week ago, she started a three-day course of IV steroids. Yesterday, she spent 6 hours getting an infusion of IVIG, a refined human blood product.
This year our family is raising funds by participating in the Seattle Rock 'n' Roll Marathon on June 25, 2011. My Love is running while the Things and I will proudly hand out water and sport drinks to runners on race day. We will also be participating that weekend in a national JM educational forum sponsored by the foundation for the medical community and JM families. Since Cure JM is an all-volunteer organization, about 98 percent of the money we raise goes directly to the cause. It either:

  • funds medical research programs into the disease that the foundation helped start at leading hospitals in Chicago and Washington, D.C.; or,
  • pays for online or printed materials that educates people
  •  about the disease or offers support to families coping with JM's effects on their children and lives.
Donations of any size help as no one knows which dollar will be the one that funds a cure.You can help us by making a tax-deductible donation in one of two ways:

1)  Use a credit card online at http://www.firstgiving.com/fundraiser/rhondaandkevinmckeever/2011  or 
2) Print and fill out the form at this link http://tinyurl.com/3avtba8, write a check to "Cure JM Foundation" (put in the memo section that you are sponsoring Kevin and Rhonda McKeever), and then mail it to:

Cure JM Foundation
836 Lynwood Drive
Encinitas, CA 92024
Matching gift forms may also be sent to that address or faxed to (760) 230-2243 begin_of_the_skype_highlighting            (760) 230-2243      end_of_the_skype_highlighting
On behalf of all children and their families afflicted with JM, especially mine, thank you for your generous support.Kevin
 
Blog: Always Home and Uncool: www.blogonkevin.blogspot.com 
Twitter: www.twitter.com/homeanduncool.com
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Saturday, May 14, 2011

One day late not my fault this time

Not anybody's fault, actually. The poor guys at Blogger had a problem.
Anyway, I won (jointly, bleh) the debate at school. Won as in best speaker, of course.
Sorry for tiny post. Will have something creative up next, most probably.

Monday, May 9, 2011

Exam trip to Kolkata, bad time in school

I got selected for the second (& final) levels of the National Talent Search Examination. All 286 selected students from my state had their exam centre at state capital Kolkata. I had to go earlier than needed because of the Election hogging all the transport. I went Friday evening, the exam was on Sunday. I missed the fun things I do, but then Mom and I stayed with my favourite uncle and his wife who also happens to be my favourite aunt and I tell you they're totally rad people. They're funny, and are gameaholics to boot. I enjoyed staying there as I always do, I played games on their computer and laughed the whole day. And... wait for it... good food! What else does one need? But then, there was this tiny glitch: yep, the exam. It was in two parts, and there was a time fiasco in my room in the first half, otherwise things were smooth. I also boarded the Metro railways for the first time. Underground! Yahaa! It was fun. Next Kolkata target: board a tram. Though I've travelled in Kolkata before, I'd never experienced the hazardous road life there -- catching buses by winding through stopped cars at the red light, wary of the signal turning green and doing other dangerous stuff like that. I came back Sunday night, dog-tired, dreaming of chicken rolls and way rad chicken curry and other nice foodstuff. By the way, the return bus served good snacks: cream biscuits, jhalmuri, and apple juice.
Now, I have a debate the day after tomorrow in school, and my classmates and teacher just forced me to participate, and of course I hate learning speeches, I only like speaking at the extempore contests. So bleh.
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