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Monday, May 23, 2011

Featured Rollblog 6, with a special appeal

Kevin from Always Home And Uncool, is husband to a very busy wife who, in his own words, is an 'executive goddess', and whom he refers to in his blog as 'My Love'. He's also stay-at-home superdad to two kids whom he has lovingly nicknamed 'Thing 1' and 'Thing 2'. He's a talented writer and his blog has received abundant praise and recognition, including Blogger's official Blog Of Note. In the midst of the laughter-provoking articles and the happy family stories, however, there is a tiny bit of not-so-good news that bothers all of us who know him and love his blog. Usually I end my Rollblog posts with heaped praise on the blogging abilities of the author and ask you to go and check it out. However this time I'm gonna talk about the adorable Thing 1, real name Megan, who suffers from a disease called juvenile juvenile myositis, in her case dermatomyositis. Their child's trouble has lead them to join a foundation that is dedicated to helping kids like Megan. He often speaks about this on his blog; recently he sent us an e-mail inviting us to help. I forwarded it to people who I thought could help him in the cause, and I'm including it here so that you can help him, pray for him and tell others to do the same.
Dear Friends,
It's time for my annual appeal for donations to Cure JM Foundation, the nonprofit working to find better treatments and a cure for juvenile myositis, the autoimmune disease my daughter (Thing 1 aka Megan) was diagnosed with in 2002 at age 2.
My appeal has a little more urgency this year.
In the last month, Thing 1/Megan has experienced a flare, or relapse, of the disease (details about her flare and her treatment are on my blog). She had been essentially symptom free for the past three years and close to getting off all her medications until then. A week ago, she started a three-day course of IV steroids. Yesterday, she spent 6 hours getting an infusion of IVIG, a refined human blood product.
This year our family is raising funds by participating in the Seattle Rock 'n' Roll Marathon on June 25, 2011. My Love is running while the Things and I will proudly hand out water and sport drinks to runners on race day. We will also be participating that weekend in a national JM educational forum sponsored by the foundation for the medical community and JM families. Since Cure JM is an all-volunteer organization, about 98 percent of the money we raise goes directly to the cause. It either:

  • funds medical research programs into the disease that the foundation helped start at leading hospitals in Chicago and Washington, D.C.; or,
  • pays for online or printed materials that educates people
  •  about the disease or offers support to families coping with JM's effects on their children and lives.
Donations of any size help as no one knows which dollar will be the one that funds a cure.You can help us by making a tax-deductible donation in one of two ways:

1)  Use a credit card online at  or 
2) Print and fill out the form at this link, write a check to "Cure JM Foundation" (put in the memo section that you are sponsoring Kevin and Rhonda McKeever), and then mail it to:

Cure JM Foundation
836 Lynwood Drive
Encinitas, CA 92024
Matching gift forms may also be sent to that address or faxed to (760) 230-2243 begin_of_the_skype_highlighting            (760) 230-2243      end_of_the_skype_highlighting
On behalf of all children and their families afflicted with JM, especially mine, thank you for your generous support.Kevin
Blog: Always Home and Uncool: 


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